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November 2007

November 19, 2007

Running for Lymphoma Research

RunningA great big thank you goes out to two friends today. Bill Wheatley- Heckman and Kathy Bernetti. Bill completed the Philadelphia marathon yesterday in an impressive 3 hrs 25 minujtes. Last month Kathy Bernetti ran the Baltimore half marathon I believe. Through their incredible efforts and kindness they have raised almost $6,000 for lymphoma and leukemia research. I am humbled that they were spurred on to do this by my diagnosis this year.

Thank you to all who sent in contributions. I believe Bill still has the info up on his entries with instructions for anyone else who may wish to send in a contribution after the event. You have both been inspirational to me through your efforts, thanks from the bottom of my heart. Bill made a point of saving notes that accompanied the checks as they came in and sending them on to me. They are treasures, I have read and kept them all.

Paul.  November 11. 2007.

November 12, 2007

Chemo #5 Coming Up....

Five I will be getting my 5th round of chemotherapy this coming Friday. I am still doing very well. Last week I returned to work. I was certainly tired at the end of the first day, but I picked up as the week went on. My stamina is vastly improved over any previous time in recent months. I am taking time to rest in the afternoon, but other than that I am zipping around and being pretty productive. I take nothing for  pain now. I have not been able to say that for a year.

It has been good to see the kids at school. The 6th graders made me a giant get well card. They all signed it at their lunch, and it is taking pride of place in my room. The kids have been very caring and concerned about me. That is very touching, because at their stage in life (age 11/12) developmentally they are generally very wrapped up in their own little world. I have been surprised and moved by many of the kids reactions this year at school.

I am working on trying to put on some weight. Hard work I know, but someone has to do it :-) I got down to 160lb shortly after my surgery, about 25lbs or so below my norm. I know I am getting physically stronger, but I will be happier when I put a few more pounds on. I am eating very well though, and  eating snacks in between meals.

I am still hoping that it will just be the 6 total chemo treatments for me. You may think it would be better to get 8 "just in case". The only concern there is that some of the side effects of the drugs are cumulative, and you really only want to get exposed to as much as you need. Adriamycin is one of the chemo drugs, nasty stuff,  this can cause some cardiac problems if too much is received during therapy.

Come December I will bottom out on the side effects of the chemo.  The hair is pretty much gone already, as are the eyelashes. The eyebrows are on the way out. I mentioned the weight, but I think I may be on the rebound already there. I have also lost sensation in the ends of my fingers (does not help with my table soccer playing!) and my toes - another side effect of adriamycin.  I honestly do not care too much about any of it. It is good to be alive. Sure, I want the chemo to be done, and I am hoping it is just 25 days to go until I am finished, but if I need more I will quickly regroup.  I know I am doing well at the moment, getting stronger by the day.

Paul. November 12. 2007.






November 04, 2007

Feeling Good

Uparrow It has been a good week. I saw the surgeon who did my lung surgery on Friday. I had my sutures removed. A chest x-ray showed that the left lung is in good shape. I am really feeling good as a result. In fact, I would say that I am feeling as good now as at any time in recent months. Certainly since before my diagnosis in August.

I have been on a couple of walks of 2-3 miles without any problems in recent days. I was driving around in midweek and I had this feeling of just feeling "normal". I just felt good. If I listen to my body, it is telling me good things right now.

On Friday I went back to work. Apart from taking off a day for my chemotherapy, I see no reason why I cannot work full time. It will be good to get back into a routine. Right now it is uncertain as to whether I will be getting 6 or 8 chemotherapy treatments. That will be decided in December. I am hopeful that it will just be the 6. That would mean I could have my last treatment on December 7th. Just 33 days away :-) If I need the full 8 then so be it, but I cannot stop myself engaging in a countdown at this stage.

I also had an appointment this week with Adam, the PA at the oncology office. My lab values are all good and everyone seems happy with my progress. I am anticipating that I will have another PET scan just before Christmas. That will be crucial, but I am very hopeful after the negative scan in October. If anything at the moment, I am just trying to not get too carried away with all the good news. There can always be twists in the road, but I cannot deny to myself that I am feeling good and strong right now.

Paul. November 4. 2007.